#LayDown4CF

I have continued to support the national #LayDown4CF campaign, led by the parents of cystic fibrosis sufferers – including families in Colne Valley – pushing for the drug Orkambi to be made available on the NHS. Orkambi can be life-changing for sufferers of CF, but Vertex – the company which produces the drug – have rejected the NHS’s biggest pay offer ever of £500 million over five years.

I joined their protest in Parliament Square, which was partly a memorial to those lives lost from CF, and partly a plea to the government to step in and end the impasse. It is unacceptable that children’s lives are being held to ransom in this way and I was honoured to raise the case of local families in Parliament. 

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